With Patient and Persistent Advocacy, Nurses Help Pass Critical Healthcare Legislation

February 16, 2023 by Alec Stone MA, MPA, Former ONS Director of Government Affairs and Advocacy

One of the most practical safeguards (https://www.congress.gov/help/learn-about-the-legislative-process/how-our-laws-are-made) of the American democratic way of life is this legislative process with its emphasis on the protection of the minority, allowing ample opportunity to all sides to be heard and make their views known. The fact that a proposal cannot become a law without consideration and approval by both houses of Congress is an outstanding virtue of our bicameral legislative system. The open and full discussion provided under the Constitution often results in the notable improvement of a bill by amendment before it becomes law or in the eventual defeat of an inadvisable proposal.

John V. Sullivan, Parliamentarian, U.S. House of Representatives

In the final days of 2022, as the world turned the calendar to celebrate a new year, the cancer advocacy community also celebrated: One of ONS’s longtime priority bills, the Lymphedema Treatment Act, achieved a landmark legislative win, passing the U.S. Senate (https://www.apta.org/news/2022/12/20/2022-omnibus-bill) as part of the fiscal year 2023 omnibus funding package. President Biden signed it into law on December 29, 2022, securing access to treatment supplies for patients with cancer-related lymphedema.

That victory represents years of tireless advocacy. Thousands of bills are introduced through the U.S. Congress annually, but only 213 became law during 2022’s 117th congressional session. Some ideas are introduced to simply begin a formal conversation on the topic. Others, like many on the ONS Health Policy Agenda, including the Lymphedema Treatment Act, have been promoted for more than a decade.

Nurses’ Power in Policy

When nurses speak, decision-makers listen. The Lymphedema Treatment Act is proof in point: During the September 2022 ONS Capitol Hill Days, ONS member advocates lobbied for the bill directly with their congressional representatives. By sharing their patient stories, ONS members ensured lawmakers understood the critical need to pass the legislation.  

Another part of nurses’ power lies in their patience and persistence. Even when a bill doesn’t pass during that year’s congressional session, nurse advocates are laying essential groundwork for future victories. Following in the footsteps of Florence Nightingale, who said (https://blog.nursing.com/florence-nightingale-quotes), “Rather, 10 times, die in the surf, heralding the way to a new world than stand idly on the shore,” the entire nursing advocacy community remains dynamic and charges into the fray with the understanding that meaningful advancements will happen.

Help Your Peers Herald the Way

Triumphs like the Lymphedema Treatment Act fuel the flames of nursing advocacy. Increasing access to lymphedema supplies dissolves disparities for many patients, but barriers remain in all aspects of cancer care. Although they didn’t pass in the 2022 117th congressional session, oncology nurses influenced many recent pieces of legislation, including:

Oncology nursing advocacy maneuvered many of those bills through the halls of Congress to take significant procedural steps forward, building a solid foundation for the patient advocacy and professional provider communities to return for another attempt. When the bills are reintroduced, oncology nurses must join the chorus (https://voice.ons.org/advocacy/get-involved-in-onss-health-policy-advocacy) to champion them among their congressional representatives.

It may be cliche, but the process is a marathon, not a sprint. In this race, winners are those who continue to compete, recognizing opportunities, and advancing toward the finish line. “The arc of the moral universe is long, but it bends toward justice,” Reverend Martin Luther King, Jr., said (https://www2.oberlin.edu/external/EOG/BlackHistoryMonth/MLK/CommAddress.html). Advocacy follows the same path.


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